From a medical perspective, it's pretty cool the way her body has adapted around her defective heart. From a personal perspective it's just tragic.
The Flames House in Calgary is a pediatric palliative care center. I can't rave enough about the place. It sucks to have to be there but if you find yourself in a situation like this... what a blessing!
The Boy and I did find ourselves some fun. We went to the zoo, rode the C-train, and giggled past midnight on the mattress on the floor in a kind person's basement.
Here are some photos:
Air hockey with Auntie Jen. Also, it looks like he has big hips. This is an angle I've never seen of him....
The coolest swing of all time. Even Mummy wants to snuggle in and suck her thumb in this kind of cozy!