Sunday, January 24, 2010
How complicated life can become in such a short time. I have learned a lot about the Baby my Brother and Sister-in-law are planning to welcome into their lives this coming May. A routine 20 week ultrasound revealed some concerns. Further testing revealed that I will have another niece, but also that she will be a very sick little girl. Among other concerns she has Dandy-Walker Variant, Hypo-plastic right heart syndrome, heterotaxy, and truncus arteriosis. It all boils down to a whole bunch of unknowns. It is likely that this beautiful girl will be held in her parents arms, surrounded by love as she goes into the arms of Jesus.
However, nothing is sure. She may live for 5 minutes. 5 days. 5 weeks. 50 years. We will have a better idea of her outcome at birth, but her heart conditions are serious and possibly "incompatible with life".
Her Mommy and Daddy love her. Her extended family loves her. I think we love her more fiercely than we would have otherwise at this stage in her growth as we realize how limited our time with her likely will be.
It will be a long road til May. And after that, only God knows.